Priority 20 from the Living With and Beyond Cancer PSP
| UNCERTAINTY: How do the support needs of people with rare and less common cancers differ from people with more common cancers, and how are those needs best met?(JLA PSP Priority 20) | |
|---|---|
| Overall ranking | 20 |
| JLA question ID | 0073/20 |
| Explanatory note | Not available for this PSP |
| Evidence |
None identified |
| Health Research Classification System category | Cancer |
| Extra information provided by this PSP | |
|---|---|
| Original uncertainty examples | How do survival needs of rare disease patients differ from more common diseases. With my interest in sarcoma I would highlight:a) multilating surgery - amputation, facial reconstruction b) endoprosthetics, especially in those originally treated as children/teenagers c) those on daily medication - imatinib for GIST, where we have 16 years survival ~ How can sufferers from rare cancers be given adequate support? |
| Submitted by | Individual survey submissions categorised by Healthcare professional, Patient, Relative/Carer, Other, and Unknown. For full details of the type of submitter for each individual question, please see the spreadsheet of data held on the JLA website. |
| PSP information | |
|---|---|
| PSP unique ID | 0073 |
| PSP name | Living With and Beyond Cancer |
| Total number of uncertainties identified by this PSP. | 54 (To see a full list of all uncertainties identified, please see the detailed spreadsheet held on the JLA website) |
| Date of priority setting workshop | 11 June 2018 |