Priority 13 from the Liver Glycogen Storage Disease (International) PSP
| UNCERTAINTY: How can we improve the quality of life of patients with liver Glycogen Storage Disease? (JLA PSP Priority 13) | |
|---|---|
| Overall ranking | 13 |
| JLA question ID | 0090/13 |
| Explanatory note |
The final workshop participants decided that quality of life is an important aspect that should be addressed in each of the top priorities for liver GSD. |
| Evidence |
For details of the evidence checked, please see the spreadsheet held on the JLA website. |
| Health Research Classification System category | Metabolic and endocrine |
| Extra information provided by this PSP | |
|---|---|
| Original uncertainty examples | How can we increase the quality of life of GSD I patients? ~ Quality of life impact on patients and their caregivers? Adult management type 1a to improve quality of life. |
| Submitted by | Patient, carer and healthcare professionals |
| PSP information | |
|---|---|
| PSP unique ID | 0090 |
| PSP name | International Glycogen Storage Disease PSP |
| Total number of uncertainties identified by this PSP | 72 (To see a full list of all uncertainties identified, please see the detailed spreadsheet held on the JLA website) |
| Date of priority setting workshop | 24 May 2019 |