Priority 23 from the Advanced Heart Failure PSP
| UNCERTAINTY: How do health professionals respond when people with advanced heart failure ask ‘When am I going to die? Are we talking days, months, years? What about sudden death?’ (JLA PSP Priority 23) | |
|---|---|
| Overall ranking | 23 |
| JLA question ID | 0098/23 |
| Explanatory note |
There are risk prediction studies for advancement of disease but with no patient focus |
| Evidence |
Rahimi K, Bennett D, Conrad N, Williams TM, Basu J, Dwight J, Woodward M, Patel A, McMurray J, MacMahon S. Risk prediction in patients with heart failure: a systematic review and analysis. ACC Heart Fail. 2014 Oct;2(5):440-6. doi: 10.1016/j.jchf.2014.04.008. Epub 2014 Sep 3. |
| Health Research Classification System category | Cardiovascular |
| Extra information provided by this PSP | |
|---|---|
| Original uncertainty examples | Can you be more specific about prognosis? ~ Can I be given a provisional timeline of cardiac failure? ~ How can I best deal with coming to terms with my mortality following a poor prognosis for my heart failure ? ~ Both my heart failure nurses are great yet sometimes feel as I do when seeing my cardiologist that my concerns and fears are not always addressed. I sometimes feel that I'm am been told things to give me hope. However these things never come such as appointments for tests or possible procedures. As for my GP I tend not to see them as they just do not understand the condition and never take any notice of what I have to say. ~ How long have I got to live? |
| Submitted by | 4 x patients, 2 x health professionals, 1 x carer |
| PSP information | |
|---|---|
| PSP unique ID | 0098 |
| PSP name | Advanced Heart Failure |
| Total number of uncertainties identified by this PSP. | 65 (To see a full list of all uncertainties identified, please see the detailed spreadsheet held on the JLA website) |
| Date of priority setting workshop | 13 February 2019 |