Pediatric Migrant Health in Europe Steering Group terms of reference

  • Published: 29 October 2024
  • Version: V1 - September 2024
  • 3 min read

Steering Group – Terms of Reference 

 

This document sets out the Terms of Reference for the Steering Group of the James Lind Alliance (JLA) Pediatric Migrant Health in Europe Priority Setting Partnership (PSP). 

It provides guidelines and clear direction to Steering Group members to help manage expectations and to enable the group to hold itself accountable for its activities. 

The background and wider aims and responsibilities of the Pediatric Migrant Health in Europe PSP are set out in its Protocol.

The Pediatric Migrant Health in Europe Priority Setting Partnership

 

Membership 

  • The Steering Group is made up of a balance of people with lived experience and health professionals with an interest in health and healthcare of children and adolescents with migration experience in the European Region. 

Meeting Attendance Requirement (Quorums) 

  •  A meeting will need to have 7 of the Steering Group members (ideally at least 2 people with patient & migration perspective, 2 double experts, and 2 healthworkers) present to make sure decisions are representative. 

Tasks for Steering Group Members

  • Share your thoughts and guide project plans and materials 
  • Use your expertise to make our work relevant to the communities involved 
  • Help publicise the PSP, the surveys, and results 
  • Attend monthly meetings 
  • Be as involved as you want to be and participate actively

Where SG members have specific skills and capacities, you may support: 

  • Consultation where online not appropriate, eg interviews, focus groups 
  • Working with the information specialist 
  • Checking questions against existing evidence 

If you cannot attend a meeting, please ensure you read any papers in advance, and share your thoughts and comments with the others. 

Principles

  • Inclusivity: We work together respectfully, making sure that everyone can participate regardless of their background. 
  • Equality: Everyone's knowledge and experiences are equally important. We treat opinions equally and respect differences in viewpoints. 
  • Fairness and transparency: We openly declare any personal interests, and all decisions and activities are documented transparently. 
  • Evidence-base: We make sure that our work acknowledges and builds upon existing knowledge. 

Specific Roles

Chair:  The PSP will be chaired by Toto Gronlund, a JLA Adviser.  The JLA Adviser’s role is to support and guide the PSP, as a neutral facilitator, ensuring that the process is followed in a fair, transparent way, with equal input from patients, carers and clinicians and their representatives. 

Lead: Julia Brandenberger is the lead for the PSP. The Lead works closely with the JLA Adviser and the PSP coordinator to champion the PSP and ensure it is successfully promoted, completed and disseminated to funders.

Coordinators: Farah Kazi and Veronika Wiemker are responsible for the coordination and administration of the PSP.  This includes arranging meetings and workshops, and communicating with the group. 

Information Specialist: Nicole Weydmann is the Information Specialist for the PSP.  Her role is to advise the Steering Group on data management and analysis strategies and agree these with the group.  She also reviews and analyzes the data collected, reviews existing evidence, and helps develop the long list of questions, under the guidance and assurance of the Steering Group.  The outputs delivered by the Information Specialist will be approved by the Steering Group.

Our Code of Conduct

As a member, you are expected to: 

  • Uphold the above principles
  • Respect the confidentiality of sensitive information shared within the group
  • Embrace diversity and inclusion, treating everyone with fairness and without discrimination.

We want all individuals involved in the PSP to feel comfortable, respected, and empowered to contribute fully. Your input is highly valued.

Any concerns related to conduct should be raised with the PSP leader (Julia Brandenberger) and/or the JLA Adviser (Toto Gronlund) 

Declaring interests

Steering Group members are asked to declare any interests relevant to the Pediatric Migrant Health in Europe PSP. The JLA provides an example Interests and Privacy form, and the interests of each member will be shared among the group. 

​​Timescales

The Pediatric Migrant Health in Europe PSP first Steering Group meeting will be on July 8, 2024

Please refer to the Mi-CARE PSP protocol for details of the steering group members and their roles.